Polycystic Ovary Syndrome (PCOS)

M/C Stats…Whats this all about? (m/c ment)

Question:

Missy i’m sorry to hear about the things going on in your life.  I remember your name from this board, and I think of you all as family.  I hope 2000 brings you happier days.

Response:

Missy – I was very glad to see your name as a poster, but I am very sorry for what you have been through these last few months.  It just goes to show you that life is not fair, as the crew on this newsgroup is very well aware. I am hoping and praying that the new year and new millenium brings new hope and satisfaction to all of those who still remain posting to m.h.i. Take care and know that my prayers are with you. Rachel

Response:

Dear Debbie-      I’m so glad you are back!   You scared me.  When we didn’t hear from you, I was very worried.       Anyway,  I am so, so sorry about the m/c.  D*mit!  I thought this would be the one for you.  How much can we all take???     As far as indulging because you don’t have to worry about cycling,  well I’ve been eating like a pig,  drinking up a storm  and having sex with Dh where ever we want,  when ever we want,  JUST  BECAUSE  WE   WANT!      Go for it!   It’s a nice to have fun and be in love again     For the survey…..I had one D&C in 2-99 and 1 early m/c in 4-99.   My FIL,  Dr. FIL that is,  feels that many womens’  IF is due to being on the b/c pill for several years.  I was on it for 17 yrs of my life.  Isn’t that ironic?     Hugs to you, Mari

Response:

Dr. FIL that is, feels that many womens’ IF is due to being on the b/c pill for several years.

Is it scientific? I’ve been taking an extra amount of Cyproterone Acetate 12 mg (along with my BCP) for 15 days of every cycle.  ,,  ,—, (_,/ _/   _/__/ ,,/_/,,/_/,,

Response:

Debbie I don’t have any answers for you but want to let you know how very sorry I am. It just plain stinks and I’ll never know why. Take care Hugs Diane

Response:

Hi Debbie, I am so very sorry for your loss.  I have had two miscarriages in the past 2 years.  I at 9 weeks and 1 at 7 weeks. No causes have been found for my miscarriages and I’ve had all the immune and anatomy testing possible.  My progesterone has always been high and with one miscarriage I was even on supps.  I personally do not think that it is environmental/lifestyle-related.  People around me seem to conceive with ease and I live (and have always lived) what I assess to be a very healthy life.  However, I can’t accept the fact that this is all accounted for by very bad luck (what some doctors have told me).  It’s terrifying to not know why, but for some reason I have faith that this will work out for us.  Hope is all I have right now.  My thoughts and prayers are with you and DH.  I wish there was something I could do to help.  Please be kind to yourself and take good care, Kim

Response:

You should look into immunological testing! Look up http://www.inciid.org/immune.html It has helped many women. Good Luck Lynn – Hide quoted text — Show quoted text – Hi. I just got up from a nap…and was thinking about how many of us on here have miscarried. I kinda wanted to do a poll. For me, I have m/c 7 times now, all before the end of week 7. 4 m/c in just the last two years. I have a completely tipped uterus, but Dr.s say that is not a problem. Dr. say its ‘a progesterone problem’, yet Ive been on Crinone the last two pg. Sometimes I wonder if there is ’something’ in our world these days that makes so many of us struggle with IF.  If its in the food we ate growing up, the water we drank, something we have breathed… may sound like Im grabbing at straws, but you never know!  Would love to hear from my cyber friends on this one… Love and hugs,,, Debbie

Response:

Debbie, Glad you are feeling well enough to think about this. We had 2 m/c (7 weeks) then discovered a fibroid, had that removed. M/c at 10 weeks due to Turners syndrome. Now m/c 5/12/99 and again 9/12/99, the second one was ectopic. We have had a total of 18 embryos transfered after 5 ICSI’s, and still do not have a baby. They have tested for APA and the result was normal, the more extensive APA testing is not done here,(South Africa) and if it is the problem, the treatment is not available here either, so it is hopefully not the problem.  RE says he does not know what more to test, everything he has tried has come back normal. I do think sometimes that we are missing something, and it is something that obvious that nobody thought about it.  After changing to work part time we really thought that with less stress it would be the answer, but obviously not. Perhaps 2000 will bring new hope and fresh ideas. Good luck to you all. Erin

Response:

Debbie, I’m sorry to hear you’ve lost yet another pg – I’ve had 3 very early m/c (2 natural & 1 IVF) in a span of 8 mos. this past year (was unexplained for 3 yrs).  After the 3rd loss we saw a specialist & immune testing revealed I have no maternal blocking antibodies & elevated natural killer cells. I’m still undergoing the treatment for this & I don’t know what my chances of success are now because my recent FSH level jumped up to 9.8 from 7.9   Take care, Tammy

Response:

Gee, so MANY m’c’s on this board.  SOO much heartache.  I do agree with Paula, though.  I think it only *seems* like IFer’s m/c more b/c we know so early on that we are pg.  Dr. Schoolcraft told me that if every sexualy active woman of child bearing age had to take a HPT EVERY month at 14dpo, we would probably see the m/c rate in naturally conceived pg’s would be close to 50%.  I myself have had four m/c’s, the last two pg’s being twins.  All my pg’s were with the help of ART.  So far all testing has been normal and no cause has been found for my m/c’s.  If it’s true what Mari’s Dr. FIL, then I too took the pill for 16 or 17 years.  Who knows?   Fondly,  Rea 6 ^i^’s

Response:

We miscarried after seeing heartbeat 3 years ago (only time pregnant). Been trying now for many years. I frankly wonder with all the embryos transferred with IVFs why we haven’t at least gotten a pregnant more, even if we did miscarry. The failure to implant an embryo we saw a photo of feels like a little miscarriage, but seeing the heartbeat and then lost still haunts us. For what it is worth: I won’t use Crinone (at least not just one tube) because on the IVF cycle that I used it my period started up early by 4 days. That is the only time that ever happened. Without meds I have a natural luteal phase defect of 3 – 5 days and short light periods. I have found that progesterone in oil shots works better (and last doctor also included suppositories). With the oil shots in the hip my IVF cycles have never started up early and my lining is good. When I got pregnant I used 100mg per day, but most docs just say 50mg is okay (I have asked to use more and they have said okay, but my hips might get more sore). I have permanent lumps in my hips now from all my various shots (scar tissue?). I’m so sorry for your recent loss when I know you had such hopes. You also might want to look into some of the autoimmune issues, if you decide you want to try again. HUGS! Meg F – Hide quoted text — Show quoted text – Hi. I just got up from a nap…and was thinking about how many of us on here have miscarried. I kinda wanted to do a poll.   For me, I have m/c 7 times now, all before the end of week 7. 4 m/c in just the last two years. I have a completely tipped uterus, but Dr.s say that is not a problem. Dr. say its ‘a progesterone problem’, yet Ive been on Crinone the last two pg. Sometimes I wonder if there is ’something’ in our world these days that makes so many of us struggle with IF.  If its in the food we ate growing up, the water we drank, something we have breathed… may sound like Im grabbing at straws, but you never know!  Would love to hear from my cyber friends on this one… Love and hugs,,, Debbie

Response:

Debbie, I left this ng and then left online for the past several months.  (Quick update = Since I left this ng in August, I managed to:  Get pg with another IVF/ICSI/AH and PGT, lose my great-grandmother, lose our daughter at 6 weeks, and lose my nanny (grandmother).  All deaths within the past two months.  I’m not asking for sympathy…I’m doing just fine.  I just thought it appropriate to post an update on why I’ve not been here.)   Being a little sentimental, I decided to get online and check all the old ng’s out.  I hope this comes across the right way.  But, I saw very quickly why I subconsciously didn’t get online.  Reading your post – and the many others – tore my heart out.  I had a "Pollyanna" attitude that I’d check up on everyone and there would be all these new names and none of the familiar ones.  How disappointing  I wish I could say something to help ease the hurt and pain with which you are dealing. I can’t seem to type the words that I’m feeling when reading your post and others.  Please just know that you are in my thoughts.  And, for those of you who are comforted by it, know you are also in my prayers. Sincerely, Missy in Indiana  

Response:

Missy I am so sorry to hear all you have been through.  Thank you for sharing, we miss you!  I don’t know what to say, you have been through some terrible losses – we are all here for you, I feel the same about reading posts, its is truly heart breaking. I am thinking about you too, I wish you comfort and all the best. Hugs Diane

Response:

Dear Missy-     It was good to hear from you.  I am very sorry for all of the sadness you have had to deal with,  lately.  Hopefully,  2000 will bring many good things for all of us. Mari

Response:

Hey Debbie……. I have to start by saying Sorry for you loss.  I really know how you must feel now.  I had 1 m/c in May 98 due to a septate uterus.  I had the uterine septum removed and still no luck.  There has to be something else wrong somewhere.  I do also have mild endo in which my RE said that probably wasn’t the problem.  I also have a tipped uterus…leading us to IUI.  I am currently in the 2ww from h*ll.  Best of luck to you in whatever you choose!! Love, Vanessa – Hide quoted text — Show quoted text – Hi. I just got up from a nap…and was thinking about how many of us on here have miscarried. I kinda wanted to do a poll. For me, I have m/c 7 times now, all before the end of week 7. 4 m/c in just the last two years. I have a completely tipped uterus, but Dr.s say that is not a problem. Dr. say its ‘a progesterone problem’, yet Ive been on Crinone the last two pg. Sometimes I wonder if there is ’something’ in our world these days that makes so many of us struggle with IF.  If its in the food we ate growing up, the water we drank, something we have breathed… may sound like Im grabbing at straws, but you never know!  Would love to hear from my cyber friends on this one… Love and hugs,,, Debbie

Response:

Hi Deb, It’s hard for me to believe that it is something that we eat, or something in our environment, etc…that causes us to m/c.  Just look at all the women taking cocaine, alcohol, tobacco, and other drugs during their entire pregnancies and go on to have healthy babies.   I just don’t …can’t…believe that it is under our control.  Have you undergone testing for recurrent m/c?  My RE wants to wait to see if the next pg ends in m/c before we start testing.  I would like to know why I have trouble getting pg…and then staying pg…too. I’m so sorry for your losses, hon. Brenna 2 m/c (at 10 weeks and at 5 weeks)

Response:

I’ve lost 5 pg’s (4 m/c’s, 1 ectopic) After the 3rd m/c (because they make you wait to have that many!!) I had some testing done and found out that I did not have any Blocking Antibodies. This is the thing they do the LIT’s for. I had the treatment, but have not had a successful pg in the window of time they give you. It breaks my heart to think that my babies were rejected by my own body! Considering I only have 1 tube, I’ve not had too much problem conceiving, but keeping them seems to be the problem for me too. I also am running out of time here…I am 42 (for a few more months) Debbie…have you been tested for immune stuff? Karen – Hide quoted text — Show quoted text – Hi. I just got up from a nap…and was thinking about how many of us on here have miscarried. I kinda wanted to do a poll.   For me, I have m/c 7 times now, all before the end of week 7. 4 m/c in just the last two years. I have a completely tipped uterus, but Dr.s say that is not a problem. Dr. say its ‘a progesterone problem’, yet Ive been on Crinone the last two pg. Sometimes I wonder if there is ’something’ in our world these days that makes so many of us struggle with IF.  If its in the food we ate growing up, the water we drank, something we have breathed… may sound like Im grabbing at straws, but you never know!  Would love to hear from my cyber friends on this one… Love and hugs,,, Debbie

Response:

I just got up from a nap…and was thinking about how many of us on here have miscarried. I kinda wanted to do a poll.  

With XH I had one miscarriage at about 10 weeks.  (Conception was a near miracle anyhow, since we later found out he had near 0 motility and near 0 normal sperm.) With DH I’ve had one miscarriage (last January) at about 7 weeks and what appears to be two failed implantations (in the last 5 months). Less than a month before I can finally get to my doctor’s appt and get referred to an RE.  I’ll be glad when I’m really ‘on the trail.’ Teri

Response:

Debbie, I have had the one M/C at 6wks 4days. If its in the food we ate growing up, the water we drank, something we have breathed…

I wonder if its maybe even hereditary because my cousin has also had problems with infertility (m/c, endo) I dont know why we m/c but if we did know would it make it any easier on us? Would we wonder if because of what we know that it was something we did wrong?  There are so many feelings involved in IF alone that anything on top of it is almost unbearable at times.   I do know Debbie,  that you are so strong and I admire you so much and I think that this quality about you is going to lead to great things whether its IF or any other struggle that comes your way.   Ellen PCOS 3rd cycle of clomid 50mg 1~j~ 3/99

Response:

I had one m/c that I know of. It was about 20 years ago and I was 6 weeks. Janet

Response:

Hi: I had one m/c post ICSI.  The RE did the D&C and took a sample of the tissue.  I guess normally they wait until the 3rd m/c.  The fetus was found to have chromosomal damage (Turner’s syndrome:  only one sex chromosome).  I just completed a second cycle of ICSI, with pre-implantation genetic testing done on the embryos.  One of them was found to have Turner’s syndrome as well.  Anyways the 2 embryos that did pass the test, didn’t take. Debbie, I’m so sorry about your m/c. Karen

Response:

Sometimes I wonder if there is ’something’ in our world these days that makes so many of us struggle with IF.  If its in the food we ate growing up, the water we drank, something we have breathed… may sound like Im grabbing at straws, but you never know!  Would love to hear from my cyber friends on this one…

My theory on this… IF women may be some of the only ones who even *know* they’re pregnant at 4 weeks, 5 weeks. Many "normal" fertile women wait until they’ve missed a period (even two), maybe by a couple of weeks, before they would even think about taking a pregnancy test. I know that a large percentage of all pregnancies end in very early miscarriage, but many women don’t even know they’re pregnant, so they just assume it’s a late and/or heavy period. We, of course, already know we’re pregnant. Not that this diminishes the pain, but I think it gives us the impression that IFers miscarry more than the fertile world, which may not be the case. Debbie, I’m so sorry about what you’ve been through. Please take care of yourself. Paula 1 ^i^ 3/98

Response:

A friend of mine who has had multiple m/c swears there is something in our environment or daily lives that is causing reproductive problems in both men and women.  Maybe food additives/chemicals we eat and drink contribute to it?  I know it couldn’t be the cause of all reproductive problems but maybe it’s a factor in some of them. It’s a different problem, but I’ve wondered why I don’t ovulate.  I am almost positive I used to and I’m only 34 (and I wasn’t ovulating on my own 3 years ago)… I wonder if it’s age or something else? Cathy

Response:

Hi. I just got up from a nap…and was thinking about how many of us on here have miscarried. I kinda wanted to do a poll.   For me, I have m/c 7 times now, all before the end of week 7. 4 m/c in just the last two years. I have a completely tipped uterus, but Dr.s say that is not a problem. Dr. say its ‘a progesterone problem’, yet Ive been on Crinone the last two pg. Sometimes I wonder if there is ’something’ in our world these days that makes so many of us struggle with IF.  If its in the food we ate growing up, the water we drank, something we have breathed… may sound like Im grabbing at straws, but you never know!  Would love to hear from my cyber friends on this one… Love and hugs,,, Debbie

Response:

I have had 5 MC’s and 1 ectopic…….yuk!!! I am soon going to learn my results as to why I am having such a problem ~~Best wishes that all of your hopes and dreams come true~~ Cyndie TTCx5yrs DES exposure 1 ectopic Many miscarriages (last one 9/99) 1 lap Back in the saddle..I mean stirrups again!!!!! Morgan, you will live in my heart and soul forever.

Response:

Filed under: PCOS Infertility

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