no hormones elevated?Help
Question:
My new dr.called me and said none of my hormones were elevated and so she said they don’t think I have pco.I have the physcial findings of it with the cysts,but no elevated hormones.She wants me to do a urine corsitol test over 24hr.I am suspecting an adrenal problem,but she didn’t thing my dhea-s was that high and it was 505 the last time I had tests done and I looked it up onhealth answers and it said at 50-250is normal.My book said something like to 450 was normal so I think mine is high.Has anyone had this happen?I guess she will find out what is wrong with me.I am feeling slightly nautious from the met.TIA,Robin — We’re in this together, Sent via Deja.com http://www.deja.com/ Before you buy.
Response:
- Hide quoted text — Show quoted text -robinortiz wrote: > My new dr.called me and said none of my hormones were elevated and so > she said they don’t think I have pco.I have the physcial findings of it > with the cysts,but no elevated hormones.She wants me to do a urine > corsitol test over 24hr.I am suspecting an adrenal problem,but she > didn’t thing my dhea-s was that high and it was 505 the last time I had > tests done and I looked it up onhealth answers and it said at 50-250is > normal.My book said something like to 450 was normal so I think mine is > high.Has anyone had this happen?I guess she will find out what is wrong > with me.I am feeling slightly nautious from the met.TIA,Robin > — > We’re in this together, > Sent via Deja.com http://www.deja.com/ > Before you buy.
I had weird cortisol levels all my life. They always said my hormones were within normal range. Normal for whom? Now, at age 50, an arthritis doc said I had pco and that they can’t always find it in a blood test. He’d go by what he could see. I thought I had adrenal problems too, but he said no – just pco. "just" I’d like him to have lived in my body since puberty!! I can’t advise you and can’t really comfort you as I never was treated, I just learned to live with it. I hope someone else more knowledgeable than I can answer your questions and we’ll both learn. Carone
Response:
Hello Robin: PCO is diagnosed by irregular cycles, evidence of male hormone excess (such as hirsutism), and the elimination of other known causes. The blood tests do not diagnose PCO but rather rule out other causes of irregular cycles (such as elevated prolactin, ovarian failure), and other causes of hirsutism (rare adrenal diseases, and usually not necessary). Thus, normal blood tests are highly compatible with the diagnosis of PCO, if the history is suggestive. The doctor that overuses blood tests or ovarian ultrasound to diagnose PCO does not know what he/she is doing. A suggestive history, with the ruling out of other similar causes is all that is necessary. The most important tests are to ensure that blood lipids (cholesterol, triglycerides) and sugar (diabetes) are not elevated as they are true health risks, and then get on with therapy based on her specific concerns. The clear recomendations by WHO are: PCOD is a state of chronic estrogenized anovulation (irregular cycles, long standing) with evidence of hyperandrogenism (hirsutism, acne, etc) and other causes have been eleminated. Bernie In article <83784f$as…@nnrp1.deja.com>, robinortiz – Hide quoted text — Show quoted text -<robinortiz…@yahoo.com> wrote: > My new dr.called me and said none of my hormones were elevated and so > she said they don’t think I have pco.I have the physcial findings of it > with the cysts,but no elevated hormones.She wants me to do a urine > corsitol test over 24hr.I am suspecting an adrenal problem,but she > didn’t thing my dhea-s was that high and it was 505 the last time I had > tests done and I looked it up onhealth answers and it said at 50-250is > normal.My book said something like to 450 was normal so I think mine is > high.Has anyone had this happen?I guess she will find out what is wrong > with me.I am feeling slightly nautious from the met.TIA,Robin > — > We’re in this together, > Sent via Deja.com http://www.deja.com/ > Before you buy.
Response:
Robin, All of my hormone levels have been "normal" but I have the physical findings with the exception of hirsutism, which makes sense since free testosterone and DHEA-S were fine. However, when I finally convinced my RE to test my fasting insulin levels they were elevated and after a course on Metformin, which restored my periods to nearly normal, I’m now expecting my first child, a baby boy. Just about to enter the third trimester. Keep on your doctor. Have you been checked for IR? It’s worth being a pain in the butt to your dr. My RE apologized to me for making me wait a year to start the Met. She said that if she had known that I would respond so well she would have let me start when I asked for it. Despina nearly 29 weeks pg – Hide quoted text — Show quoted text -robinortiz wrote: > My new dr.called me and said none of my hormones were elevated and so > she said they don’t think I have pco.I have the physcial findings of it > with the cysts,but no elevated hormones.She wants me to do a urine > corsitol test over 24hr.I am suspecting an adrenal problem,but she > didn’t thing my dhea-s was that high and it was 505 the last time I had > tests done and I looked it up onhealth answers and it said at 50-250is > normal.My book said something like to 450 was normal so I think mine is > high.Has anyone had this happen?I guess she will find out what is wrong > with me.I am feeling slightly nautious from the met.TIA,Robin > — > We’re in this together, > Sent via Deja.com http://www.deja.com/ > Before you buy.
Response:
My doctor explained it to me this way: PCOS is a collection of symptoms (which are well listed in earlier messages). They DO NOT all have to be present, however; Ovarian ultrasound can positively confirm PCOS but cannot rule it out. More clearly: If you have ovarian cysts: You definitely have PCOS If you don’t have ovarian cysts: You may or may not have PCOS According to that explanation, it would seem to me that you do have PCOS since you have the cysts. At any rate, it’s probably worth more talk with your doctor or a consultation with another doctor. In article <83784f$as…@nnrp1.deja.com>, robinortiz <robinortiz…@yahoo.com> wrote: – Hide quoted text — Show quoted text -> My new dr.called me and said none of my hormones were elevated and so > she said they don’t think I have pco.I have the physcial findings of it > with the cysts,but no elevated hormones.She wants me to do a urine > corsitol test over 24hr.I am suspecting an adrenal problem,but she > didn’t thing my dhea-s was that high and it was 505 the last time I had > tests done and I looked it up onhealth answers and it said at 50-250is > normal.My book said something like to 450 was normal so I think mine is > high.Has anyone had this happen?I guess she will find out what is wrong > with me.I am feeling slightly nautious from the met.TIA,Robin > — > We’re in this together, > Sent via Deja.com http://www.deja.com/ > Before you buy.
Sent via Deja.com http://www.deja.com/ Before you buy.
Response:
In article <corenblb-1512990807510…@207.148.130.166>, coren…@cadvision.com (Bernard Corenblum) wrote: – Hide quoted text — Show quoted text -> Hello Robin: PCO is diagnosed by irregular cycles, evidence of male > hormone excess (such as hirsutism), and the elimination of other known > causes. The blood tests do not diagnose PCO but rather rule out other > causes of irregular cycles (such as elevated prolactin, ovarian failure), > and other causes of hirsutism (rare adrenal diseases, and usually not > necessary). Thus, normal blood tests are highly compatible with the > diagnosis of PCO, if the history is suggestive. The doctor that overuses > blood tests or ovarian ultrasound to diagnose PCO does not know what > he/she is doing. A suggestive history, with the ruling out of other > similar causes is all that is necessary. The most important tests are to > ensure that blood lipids (cholesterol, triglycerides) and sugar (diabetes) > are not elevated as they are true health risks, and then get on with > therapy based on her specific concerns. > The clear recomendations by WHO are: PCOD is a state of chronic > estrogenized anovulation (irregular cycles, long standing) with evidence > of hyperandrogenism (hirsutism, acne, etc) and other causes have been > eleminated. Bernie
I totally agree with Bernie, but I would like to add a comment. Make sure your doctor has specifically checked your ANDROSTENEDIONES. I am a patient of the venerable Drs. Perloe and Sills, and they have told me that very, very few doctors will check androstenediones. They have patients come to them all the time whose doctors told them their hormone levels were perfectly normal, but when the good doctors tested their androstenediones – lo and behold – they came back elevated. I am one of those patients, and my levels have been very well controlled (and are now perfectly normal) through a combination of Met and Avandia. Finally, if you do have evidence of high androgens or testosterone, but your blood levels are normal, there is a possibility that your body is just more sensitive to these hormones. This is also quite common. Leah — "Boxy, but good." To send me email, please use lrog…@smartcorp.net. I use the dejanews email to filter spam. Sent via Deja.com http://www.deja.com/ Before you buy.
Response:
Androstenedione is only elevated in about 75% of women with PCOD, so is not sufficiently sensitive and is not very specific. It should not be used as a routine test, and again, we need to get away from the overuse of biochemistry to diagnose a clinical condition. The tests are only needed to rule out similar conditions, not to diagnose PCOD. More times than not, no tests are needed at all. Bernie – Hide quoted text — Show quoted text -In article <8399g3$rh…@nnrp1.deja.com>, Leah <lroger…@my-deja.com> wrote: > In article <corenblb-1512990807510…@207.148.130.166>, > coren…@cadvision.com (Bernard Corenblum) wrote: > > Hello Robin: PCO is diagnosed by irregular cycles, evidence of male > > hormone excess (such as hirsutism), and the elimination of other known > > causes. The blood tests do not diagnose PCO but rather rule out other > > causes of irregular cycles (such as elevated prolactin, ovarian failure), > > and other causes of hirsutism (rare adrenal diseases, and usually not > > necessary). Thus, normal blood tests are highly compatible with the > > diagnosis of PCO, if the history is suggestive. The doctor that overuses > > blood tests or ovarian ultrasound to diagnose PCO does not know what > > he/she is doing. A suggestive history, with the ruling out of other > > similar causes is all that is necessary. The most important tests are to > > ensure that blood lipids (cholesterol, triglycerides) and sugar (diabetes) > > are not elevated as they are true health risks, and then get on with > > therapy based on her specific concerns. > > The clear recomendations by WHO are: PCOD is a state of chronic > > estrogenized anovulation (irregular cycles, long standing) with evidence > > of hyperandrogenism (hirsutism, acne, etc) and other causes have been > > eleminated. Bernie > I totally agree with Bernie, but I would like to add a comment. > Make sure your doctor has specifically checked your ANDROSTENEDIONES. I > am a patient of the venerable Drs. Perloe and Sills, and they have told > me that very, very few doctors will check androstenediones. They have > patients come to them all the time whose doctors told them their hormone > levels were perfectly normal, but when the good doctors tested their > androstenediones – lo and behold – they came back elevated. I am one of > those patients, and my levels have been very well controlled (and are now > perfectly normal) through a combination of Met and Avandia. > Finally, if you do have evidence of high androgens or testosterone, but > your blood levels are normal, there is a possibility that your body is > just more sensitive to these hormones. This is also quite common. > Leah > — > "Boxy, but good." > To send me email, please use lrog…@smartcorp.net. > I use the dejanews email to filter spam. > Sent via Deja.com http://www.deja.com/ > Before you buy.
Response:
Filed under: PCOS Symptoms
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