I give up.!!!!!!!!! (vent)
Question:
I understnad how you feel.I’m on my third dr.and spent 4000.00 when all I needed was the Met.,but noone wanted to put me on it.This dr.isn’t great,but at least she put me on it and it’s helping me and I don’t think I am Ir.since my blood glucose isn’t high.Please don’t give up.Just find a dr.who is good.You still need to fight this.I would ask to speak to the dr.and ask them if they perscribe Met.and she if they have an understanding of pco.before you go.That’s what I did with the fertility counselors.As far as the carbs I constantly have to battle with my weight.Robin In article <20000105145533.12602.00000…@ng-fd1.aol.com>, mcg…@aol.com (McGKar) wrote: – Hide quoted text — Show quoted text -> That’s IT! I give up. This PCO is impossible. First you go for all these > tests. Then you find out you didn’t get the "right" tests. So you go and pull > teeth to get the "right" tests, and then you find out that even though the > "right" tests are normal, doesn’t mean they’re REALLY normal. Who knows maybe > you should go to another doctor next week and get some more tests, and maybe > THEY’LL be abnormal!! It goes on and on and on! Just because your fasting > insulin is normal doesn’t mean you’re not IR? Just because your ovaries don’t > have cysts NOW doesn’t mean they won’t have cysts LATER. Why don’t we all just > go and make weekly appointments with different doctors until we’re walking > around like pin cushions from all the needle holes, hoping they will find > something so we can pop a pill and be done with this PCO thing. That seems to > be what we’re doing. Why bother getting these tests at all if all we do is sit > around tell each other how they are inconclusive anyway!!!! > ARRRRGGHHHHH!!!!!!!!!!!!!!! > After extensive and exhaustive research, near driving myself crazy over this > whole thing I’ve drawn my own conclusions. If most of the doctors and > scientists don’t fully understand what drives PCOS, how the heck are WE > supposed to think we have got it all figured out? In my humble opinion, PCOS > is a very complex syndrome and is probably caused by several different factors > or combinations of factors, and probably different in each of us. If PCOS was > strictly an IR issue, then why doesn’t every woman on earth who is IR or > diabetic have PCOS? Why do some women have PCO while they are NOT IR? > Metformin works for some, not for others. Some women get so SICK from it, they > can’t take it anymore. Why is it that some women’s acne and and hirsutism get > WORSE instead of better on met? It’s all so completely confusing and I think > I’m being utterly ridiculous in assuming I can figure the whole thing out. > All these extreme measures to watch every single carb we put in our mouths is > also driving me nutty. If I’m not IR, why the heck am I trying to lower my > insulin level, when it’s already fine at 6??? The STRESS and ANXIETY we put > ourselves through over what we should eat, shouldn’t eat, should take, > shouldn’t take, what tests to have, what they mean or don’t mean is WORSE than > eating an entire box of pasta! Stress and anxiety release stress hormones and > have a very negative affect on our systems. That’s not exactly going to help > the PCO, is it? Of course not! > I think the women who are approaching this whole thing from a holistic > standpoint have got the right idea. They are seeing it as an entire body > system malfunction, and are working on toning up all areas of their > bodies/minds and lives. Eating healthier, exercising, taking their vitamins, > detoxing their livers, processing old and negative emotions and trying to > balance their systems with herbs if needed. This approach seems to make much > more sense then going from clueless doctor to clueless doctor looking for some > abnormality for which there is a magic bullet, never being satisfied when the > results are "normal." > Naturally, if you ARE insulin resistant, and overweight or having real major > health problems related to PCO, then a "real" doctor and meds are the best bet. > But I don’t fall into that category. I’m not going to keep telling doctor > after doctor that they know nothing and I’m the All-Knowing-Grand-Poo- Bah of > PCO, give me another test, so I can doubt it’s results. > That’s it! Count me out. I’m getting off the PCO Carousel. Give my opening > at the local lab to someone else. Cancel my appointment with the next clueless > doctor. I have left the building!!!!!! > Karen M
– We’re in this together, Sent via Deja.com http://www.deja.com/ Before you buy.
Response:
Thanks,for mentioning the Cysterhood,Cathy.I had fun looking at all the cysters in all the states.I’ve come to the conclusion we all have dark hair.Maybee we are all related.Robin In article <20000108111752.22522.00000…@ng-fu1.aol.com>, cyster…@aol.comedyclub (Cathy the Cat Loving Cyster) wrote: – Hide quoted text — Show quoted text -> To find a PCOS friendly dr., try the Cysterhood page to see if there is a > contact in your area: > http://www.psquareddoc.com/psplace/pcofiles/cysterhood.html > Otherwise, someone from the PCOSA organization might be able to help you find > one. > http://www.pcosupport.org/ > If your GP has seen how your test results are, is she open-minded enough to > treat you? > ^—^ Cathy > { ‘ . ‘ } > ` "Those who play with cats must expect to be scratched." > Hope for Cysters: http://pages.ivillage.com/bh/cystercat > My web page: http://peaceonearth.faithweb.com > Visit Little C: http://littlec.faithweb.com
– We’re in this together, Sent via Deja.com http://www.deja.com/ Before you buy.
Response:
To find a PCOS friendly dr., try the Cysterhood page to see if there is a contact in your area: http://www.psquareddoc.com/psplace/pcofiles/cysterhood.html Otherwise, someone from the PCOSA organization might be able to help you find one. http://www.pcosupport.org/ If your GP has seen how your test results are, is she open-minded enough to treat you? ^—^ Cathy { ‘ . ‘ } ` "Those who play with cats must expect to be scratched." Hope for Cysters: http://pages.ivillage.com/bh/cystercat My web page: http://peaceonearth.faithweb.com Visit Little C: http://littlec.faithweb.com
Response:
I forgot to say that she was my old GP. My dad got a new job which meant new insurence. The doctor I’m seeing now is really good, and seems like he’s open to anything. He sent me to a gyno for my PCOS but the appointment was the day before Christmas Eve. and we all forgot. So we plan to go to that doc and see what he says, then end up having to go to an endo anyway. It’s also suspected that I have CAH to complicate things even more. I’m always on the lookout for a new doctor though. In case the current one falls through. Thanks for the help. Grace In article <20000108111752.22522.00000…@ng-fu1.aol.com>, cyster…@aol.comedyclub (Cathy the Cat Loving Cyster) wrote: – Hide quoted text — Show quoted text -> To find a PCOS friendly dr., try the Cysterhood page to see if there is a > contact in your area: > http://www.psquareddoc.com/psplace/pcofiles/cysterhood.html > Otherwise, someone from the PCOSA organization might be able to help you find > one. > http://www.pcosupport.org/ > If your GP has seen how your test results are, is she open-minded enough to > treat you? > ^—^ Cathy > { ‘ . ‘ } > ` "Those who play with cats must expect to be scratched." > Hope for Cysters: http://pages.ivillage.com/bh/cystercat > My web page: http://peaceonearth.faithweb.com > Visit Little C: http://littlec.faithweb.com
Response:
>From: ophe…@enteract.com (Grace) >2) don’t have the money to be spending on going to 5 different doctor’s in >hopes of finding one that might try and help. >I’m sure the insurance wouldn’t pay >for. So were stuck in Chicago, where no one has a clue.
Grace The University of Chicago has ongoing studies for PCOS and I know there are knowledgeable doctors there. Here is the address to their site…..hope this helps. http://centerforpcos.bsd.uchicago.edu Kellie
Response:
Thank you for the advice, really. I’ve already gone there. I went there right after the Doc was on Dateline. The one I saw said I didn’t even have PCOS and that I’m just fat and I needed to see a nutritionist. Even though my free testosterone was elevated with the few tests he did run. The people there treated me like crap basically. The doc was just looking for people he could have in his study, I wasn’t (I hope none of you take offense to this.) hairy enough, I didn’t have acne covering my face (I actually have it on my rump which I think is actually worse because sometimes I can’t even sit down.), and at the time I wasn’t fat enough. Since then I’ve gained at least 50 pounds. It took almost two months before I received my tests results and even that took my mother calling threatening to call the medical director of the hospital. After we did finally receive we had suspicions that he made some of the tests results to appear normal when they actually weren’t. We took them to my GP and she said to take them over again and see what the results were this time. We did and they weren’t even close to being what the doc at UIC wrote down. My GP said there was no possible way everything could fluctuate as much as it did according to the results that doctor gave. Does anyone know of anyone else in the city of Chicago I could go see? I’m beginning to run out of options rather quickly. Thanks. Grace – Hide quoted text — Show quoted text -> >From: ophe…@enteract.com (Grace) > >2) don’t have the money to be spending on going to 5 different doctor’s in > >hopes of finding one that might try and help. > >I’m sure the insurance wouldn’t pay > >for. So were stuck in Chicago, where no one has a clue. > Grace > The University of Chicago has ongoing studies for PCOS and I know there are > knowledgeable doctors there. Here is the address to their site…..hope this > helps. > http://centerforpcos.bsd.uchicago.edu > Kellie
Response:
Kellie, Hi ….I am in Iowa too! I have been considering going to the University Hosp fertility clinic…Can you tell me more about it or which doctors are knowledgeable about pcos? You can email me privately if you wish…Thanks Lisa l…@spinner.org – Hide quoted text — Show quoted text -KELSO 1121 wrote: > Grace, > Sorry to hear about your experience. I just dont understand some people. If I > come across someone I’ll let you know. I live in Iowa and we have some good > docs at University of Iowa Hospital and clinics (Iowa City)…..so if you ever > move this way??? > Good Luck, > Kellie > Kellie
Response:
In article <20000106114441.14153.00000…@ng-ff1.aol.com>, kelso1…@aol.com (KELSO 1121) wrote: – Hide quoted text — Show quoted text -> No,they didn’t test it.Guess it’s too late now that I’m on the Met.Robin > >From: robinortiz > >I don’t > >think I am Ir.since my blood glucose isn’t high. > Robin, > If your blood glucose was high…you would be diabetic. You may or may not > know this but what you need to be concerned about is your fasting insulin > level. Insulin in your body works at keeping your blood glucose levels > normal…..so your insulin could be elevated. Did you have that checked when > you had your glucose levels checked? If you read some of the old > posts….others explained this much better than I. > Just a thought > Kellie
– We’re in this together, Sent via Deja.com http://www.deja.com/ Before you buy.
Response:
>rom: ophe…@enteract.com (Grace) >The people there treated me like crap basically. >It took almost two months before I received my tests results and even that >took my mother calling threatening to call the medical director of the >hospital. After we did finally receive we had suspicions that he made some >of the tests results to appear normal when they actually weren’t.
Grace, Sorry to hear about your experience. I just dont understand some people. If I come across someone I’ll let you know. I live in Iowa and we have some good docs at University of Iowa Hospital and clinics (Iowa City)…..so if you ever move this way??? Good Luck, Kellie Kellie
Response:
>From: robinortiz >I don’t >think I am Ir.since my blood glucose isn’t high.
Robin, If your blood glucose was high…you would be diabetic. You may or may not know this but what you need to be concerned about is your fasting insulin level. Insulin in your body works at keeping your blood glucose levels normal…..so your insulin could be elevated. Did you have that checked when you had your glucose levels checked? If you read some of the old posts….others explained this much better than I. Just a thought Kellie
Response:
It’s not always that easy to just go to doctor’s all the time. I have another medical problem that doc’s have -no- clue what’s so ever about. It’s what the astronauts get when they come back from space. NASA has no clue about it. I’ve got double the annoying doctor’s, un-needed tests and stupidity! Plus, the medicine that -can- possibly help the PCOS I can’t take because it lower’s blood pressure which I can’t do because it’s normally 40/60. Also saying just go until you find a doctor that has a brain about this isn’t easy because 1) people have jobs that they can’t take off work for. 2) don’t have the money to be spending on going to 5 different doctor’s in hopes of finding one that might try and help. That’s what people have said to me and my family about my other problem’s. There are doc’s in other states that have better understanding of it, but my family doesn’t have the money to be spending on train fare (my brother and I can’t fly.) hotels plus the doctor visit which I’m sure the insurance wouldn’t pay for. So were stuck in Chicago, where no one has a clue. So saying just keep going to doctor’s isn’t as easy as you make it sound. Spending $4000 isn’t something everyone can do, PCOS doesn’t effect just the rich. (yes to be able to spend $4000 on going to doctor’s does seem rich to me.) Grace
Response:
In article <20000105145533.12602.00000…@ng-fd1.aol.com>, mcg…@aol.com (McGKar) wrote: <snip> > Karen M
Yeah, what she said! I’m doing better for myself than years of docs did anyway. Low-carb and met (gotten on my own, after doc did liver/kidney function tests) are producing the desired results, so I’d as soon not be a pin-cushion anymore myself. — Marion, 213 in December ‘98 Atkid since 1/18/99, soccer+pumpin’ iron 205/183/? BF% 41/29/20 Sent via Deja.com http://www.deja.com/ Before you buy.
Response:
That’s IT! I give up. This PCO is impossible. First you go for all these tests. Then you find out you didn’t get the "right" tests. So you go and pull teeth to get the "right" tests, and then you find out that even though the "right" tests are normal, doesn’t mean they’re REALLY normal. Who knows maybe you should go to another doctor next week and get some more tests, and maybe THEY’LL be abnormal!! It goes on and on and on! Just because your fasting insulin is normal doesn’t mean you’re not IR? Just because your ovaries don’t have cysts NOW doesn’t mean they won’t have cysts LATER. Why don’t we all just go and make weekly appointments with different doctors until we’re walking around like pin cushions from all the needle holes, hoping they will find something so we can pop a pill and be done with this PCO thing. That seems to be what we’re doing. Why bother getting these tests at all if all we do is sit around tell each other how they are inconclusive anyway!!!! ARRRRGGHHHHH!!!!!!!!!!!!!!! After extensive and exhaustive research, near driving myself crazy over this whole thing I’ve drawn my own conclusions. If most of the doctors and scientists don’t fully understand what drives PCOS, how the heck are WE supposed to think we have got it all figured out? In my humble opinion, PCOS is a very complex syndrome and is probably caused by several different factors or combinations of factors, and probably different in each of us. If PCOS was strictly an IR issue, then why doesn’t every woman on earth who is IR or diabetic have PCOS? Why do some women have PCO while they are NOT IR? Metformin works for some, not for others. Some women get so SICK from it, they can’t take it anymore. Why is it that some women’s acne and and hirsutism get WORSE instead of better on met? It’s all so completely confusing and I think I’m being utterly ridiculous in assuming I can figure the whole thing out. All these extreme measures to watch every single carb we put in our mouths is also driving me nutty. If I’m not IR, why the heck am I trying to lower my insulin level, when it’s already fine at 6??? The STRESS and ANXIETY we put ourselves through over what we should eat, shouldn’t eat, should take, shouldn’t take, what tests to have, what they mean or don’t mean is WORSE than eating an entire box of pasta! Stress and anxiety release stress hormones and have a very negative affect on our systems. That’s not exactly going to help the PCO, is it? Of course not! I think the women who are approaching this whole thing from a holistic standpoint have got the right idea. They are seeing it as an entire body system malfunction, and are working on toning up all areas of their bodies/minds and lives. Eating healthier, exercising, taking their vitamins, detoxing their livers, processing old and negative emotions and trying to balance their systems with herbs if needed. This approach seems to make much more sense then going from clueless doctor to clueless doctor looking for some abnormality for which there is a magic bullet, never being satisfied when the results are "normal." Naturally, if you ARE insulin resistant, and overweight or having real major health problems related to PCO, then a "real" doctor and meds are the best bet. But I don’t fall into that category. I’m not going to keep telling doctor after doctor that they know nothing and I’m the All-Knowing-Grand-Poo-Bah of PCO, give me another test, so I can doubt it’s results. That’s it! Count me out. I’m getting off the PCO Carousel. Give my opening at the local lab to someone else. Cancel my appointment with the next clueless doctor. I have left the building!!!!!! Karen M
Response:
AMEN!! You took the words outta my mouth!! Karen B. 
McGKar <mcg…@aol.com> wrote in message
news:20000105145533.12602.00000038@ng-fd1.aol.com… – Hide quoted text — Show quoted text -> That’s IT! I give up. This PCO is impossible. First you go for all these > tests. Then you find out you didn’t get the "right" tests. So you go and pull > teeth to get the "right" tests, and then you find out that even though the > "right" tests are normal, doesn’t mean they’re REALLY normal. Who knows maybe > you should go to another doctor next week and get some more tests, and maybe > THEY’LL be abnormal!! It goes on and on and on! Just because your fasting > insulin is normal doesn’t mean you’re not IR? Just because your ovaries don’t > have cysts NOW doesn’t mean they won’t have cysts LATER. Why don’t we all just > go and make weekly appointments with different doctors until we’re walking > around like pin cushions from all the needle holes, hoping they will find > something so we can pop a pill and be done with this PCO thing. That seems to > be what we’re doing. Why bother getting these tests at all if all we do is sit > around tell each other how they are inconclusive anyway!!!! > ARRRRGGHHHHH!!!!!!!!!!!!!!! > After extensive and exhaustive research, near driving myself crazy over this > whole thing I’ve drawn my own conclusions. If most of the doctors and > scientists don’t fully understand what drives PCOS, how the heck are WE > supposed to think we have got it all figured out? In my humble opinion, PCOS > is a very complex syndrome and is probably caused by several different factors > or combinations of factors, and probably different in each of us. If PCOS was > strictly an IR issue, then why doesn’t every woman on earth who is IR or > diabetic have PCOS? Why do some women have PCO while they are NOT IR? > Metformin works for some, not for others. Some women get so SICK from it, they > can’t take it anymore. Why is it that some women’s acne and and hirsutism get > WORSE instead of better on met? It’s all so completely confusing and I think > I’m being utterly ridiculous in assuming I can figure the whole thing out. > All these extreme measures to watch every single carb we put in our mouths is > also driving me nutty. If I’m not IR, why the heck am I trying to lower my > insulin level, when it’s already fine at 6??? The STRESS and ANXIETY we put > ourselves through over what we should eat, shouldn’t eat, should take, > shouldn’t take, what tests to have, what they mean or don’t mean is WORSE than > eating an entire box of pasta! Stress and anxiety release stress hormones and > have a very negative affect on our systems. That’s not exactly going to help > the PCO, is it? Of course not! > I think the women who are approaching this whole thing from a holistic > standpoint have got the right idea. They are seeing it as an entire body > system malfunction, and are working on toning up all areas of their > bodies/minds and lives. Eating healthier, exercising, taking their vitamins, > detoxing their livers, processing old and negative emotions and trying to > balance their systems with herbs if needed. This approach seems to make much > more sense then going from clueless doctor to clueless doctor looking for some > abnormality for which there is a magic bullet, never being satisfied when the > results are "normal." > Naturally, if you ARE insulin resistant, and overweight or having real major > health problems related to PCO, then a "real" doctor and meds are the best bet. > But I don’t fall into that category. I’m not going to keep telling doctor > after doctor that they know nothing and I’m the All-Knowing-Grand-Poo-Bah of > PCO, give me another test, so I can doubt it’s results. > That’s it! Count me out. I’m getting off the PCO Carousel. Give my opening > at the local lab to someone else. Cancel my appointment with the next clueless > doctor. I have left the building!!!!!! > Karen M
Response:
Filed under: PCOS Syndrome
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