Polycystic Ovary Syndrome (PCOS)

PCOS /Oprah

Question:

<<Let’s see… I think was married for a month before I ever mentioned to my husband that I had to shave my throat… Now if that isn’t being embarrassed, I don’t know what is…>> That is one thing I *have* kept from my husband!  (not easy, either)   We’ve been together 18 years; married for 13, and he doesn’t know about my little hair problem.  However, I have no problem mentioning it to my doctors.

Response:

My husband doesn’t really think I have a problem with hair.  I don’t know if he is in denial, trying to be polite, or if I just maintain myself so thoroughly that he just can’t tell.  I am hoping it is the latter. I have a few coarse hairs on the lower right part of my chin, but the rest are very fine, but dark, on my upper lip and sideburns.  Like a boy just going into puberty.   I’m trying to get a referral to a new Endo tomrrow morning.  I’ll post with news. sara

Response:

I never mentioned my ‘hair problem’ to my doctor, even though it worried me, cos I was just too embarrassed.  It’s only now that I know what I have that I know WHY I got those nasty hairs and am no longer embarrassed in front of my doctor.  Other people are a different story though.  It’s bad enough that I’m a great big fat blob, I don’t want to deal with remarks about bearded ladies either. One thing I’ve always been curious about though, does anyone else get long hairs growing in strange places as well as the dark chin type hair?  For some years I’ve had the odd hair just go mad and start growing out, on my back or abdomen, wherever.  It always looked just like the others, fine and light, just long, three or four inches before I would find it.  Just curious. Kat

Response:

I have one on my upper cheek that does that. Just one long strand of hair. No other hair growing around it, all by itself. If I dident pluck it it would grow to be very long.. Mariah http://members.tripod.com/~thomar – Hide quoted text — Show quoted text -The Ginger Tabby wrote in message <3603842b.502820…@news.dircon.co.uk>… >I never mentioned my ‘hair problem’ to my doctor, even though it >worried me, cos I was just too embarrassed.  It’s only now that I know >what I have that I know WHY I got those nasty hairs and am no longer >embarrassed in front of my doctor.  Other people are a different story >though.  It’s bad enough that I’m a great big fat blob, I don’t want >to deal with remarks about bearded ladies either. >One thing I’ve always been curious about though, does anyone else get >long hairs growing in strange places as well as the dark chin type >hair?  For some years I’ve had the odd hair just go mad and start >growing out, on my back or abdomen, wherever.  It always looked just >like the others, fine and light, just long, three or four inches >before I would find it.  Just curious. >Kat

Response:

"Mariah" <thom…@bellsouth.net> wrote: >I have one on my upper cheek that does that. Just one long strand of hair. >No other hair growing around it, all by itself. If I dident pluck it it >would grow to be very long.. >Mariah

Thanks Mariah, now i don’t feel like a total freak Kat

Response:

>Has anyone else suffered feelings of embarrassment about (especially) the >hair<BR> >growth?  Did it take you a while to get up the nerve to talk to your >doctor<BR> >about it?<BR>

Absolutely Sara.  Actually My problem is thinning hair (but same principal). But I’m totally embarassed to talk to doctors about it.  That is what is especially fustrating when you are given the run around, because you have to tell different doctors.                                              Debbie

Response:

>>Has anyone else suffered feelings of embarrassment about (especially) the >>hair >>growth?  Did it take you a while to get up the nerve to talk to your>doctor >>about it?

Let’s see… I think was married for a month before I ever mentioned to my husband that I had to shave my throat, that I bleached my arm hair and that I used a dipilatory on my mustache and sideburn area.  Now if that isn’t being embarrassed, I don’t know what it.  I mean, if you can’t tell your husband about something that isn’t even your fault then who can you tell?   Definitely ignore the flame.  Nowadays I don’t feel embarrased  talking to my doctor about the symptoms because I can blame most of them on the PCO, not my lack of control, however, before being diagnosed, I remember turning bright red when I asked the doctor if there was anything I could do to control the hairgrowth, and the embarrassment everytime a doctor told me I needed to lose weight (didn’t even try telling them that I hardly ate, and I excercised regularly since I knew they wouldnt’ believe me… now I can blame it on the PCO and have ideas on how to combat it). Once diagnosed it was WAY easier to deal with… but before then, it was awful. Tina

Response:

I agree with you both sara and carrie….Unfortunately I am plenty embarassed about the way this disease has contributed to my appearance. Sara, just ignore that falme mail Heather

Response:

My doctor knows I have PCOS, but I never have mentioned to him that I do have mild hirsutism…  I have to pluck my chin and cheeks every couple of days or so.  There is always 1-3 hairs to pluck each time.  It is emabarrassing…  I just hope I never get a full beard!  Then I would really feel like a freak! The rest isn’t that emabarrassing…  most of my close friends know about my PCOS and that it causes infrtility, acne and obesity…  but only my husband knows I pluck (and I didn’t tell him until like the 2nd year of our marriage, I’d just hide in the bathroom plucking so he wouldn’t think I was gross for having chin hairs).   Whoever sent you that email is just rude…   God Bless You  <*(((><       Carrie   ;o)~ Check out my PCOS Web site… http://hometown.aol.com/cbraly2000/home.index.html

Response:

<<I wrote an E-mail to Oprah last night suggesting to do a show on PCOS to make people and physicians more knowledgeable about it.>> I think a ton of people from the PCO mailing list did this last year.  I don’t think anything ever came of it.  Well, we can keep trying! -K

Response:

I wrote to her a couple of months ago.  Too bad we can’t get it on National news.

Response:

I wrote Oprah yesterday, and today I got "flame" mail!  I called it a "Shameful" Disease, because many women find their symptoms to be embarrassing and avoid talking about them with their doctors until things have gotten really bad.  Another woman with PCO saw my Oprah post and flamed me, telling me that this was not the case with her and that I was (basically) out of line to say that women with this disease feel embarrassed about their symptoms! If this is true, then whey are well all getting electrolysis? I guess I’m just mad that she isn’t validating my feelings… Has anyone else suffered feelings of embarrassment about (especially) the hair growth?  Did it take you a while to get up the nerve to talk to your doctor about it? Sara

Response:

I wrote an E-mail to Oprah last night suggesting to do a show on PCOS to make people and physicians more knowledgeable about it.  I think PCOS deserves more exposure so that doctors will be apt to learn more about it.   Could you all please write to Oprah and suggest this.  Maybe the more letters they get the more apt they will be to do the show. Keyword: OPRAH Thanks Heather

Response:

Filed under: PCOS

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