Another newbie

Question:

Thank god I found this newsgroup.  I did not know how many other people suffered the way I do. After a trip to the neurologist and monthly trips to the doctor, we still haven’t found any type of medication that will lessen the severity of my everyday headaches.  I thought we found one for my migraines ( Amerge) but know it seems to take 6 hours for it to work.  Imitrex doesn’t work at all for me. My family doctor had upped my dosage of Propranolol about 7 times now and this doesn’t work either.  The forst neurologist didn;t even send my family doctor a report from when I went to see him.  He said my headaches are stemming from my migraines and that there is a list of meds to try!!  Why thanks doc.  When I went on this newsgroup I heard of Topomax from someone so I asked my doc.  She sai she was not familiar with it.  So now on June 12 I will go see yet another neurologist.  in the mean time my doc will up my meds once again and I will suffer until the 12 of June (at least I don’t have to wait 4 months like my first appointment) Lisa

Response:

Hi, Lisa. Do yourself a favor and get a copy of your records from the first neurologist to take with you to this new appointment. That way, there won’t be any wait while they’re obtained. Also, it’s helpful for you to make a list of everything you’ve tried and how it did, as well as a list of questions you have. If you’re not already keeping a headache diary, it would also be a big help. Good luck, — Teri Robert your About Guide to Headaches http://headaches.about.com visit our forum at: http://headaches.about.com/mpboards.htm

– Hide quoted text — Show quoted text – Thank god I found this newsgroup.  I did not know how many other people suffered the way I do. After a trip to the neurologist and monthly trips to the doctor, we still haven’t found any type of medication that will lessen the severity of my everyday headaches.  I thought we found one for my migraines ( Amerge) but know it seems to take 6 hours for it to work.  Imitrex doesn’t work at all for me. My family doctor had upped my dosage of Propranolol about 7 times now and this doesn’t work either.  The forst neurologist didn;t even send my family doctor a report from when I went to see him.  He said my headaches are stemming from my migraines and that there is a list of meds to try!!  Why thanks doc.  When I went on this newsgroup I heard of Topomax from someone so I asked my doc. She sai she was not familiar with it.  So now on June 12 I will go see yet another neurologist.  in the mean time my doc will up my meds once again and I will suffer until the 12 of June (at least I don’t have to wait 4 months like my first appointment) Lisa

Response:

Hi Lisa.  Sounds good that at least you are getting second opinions.  I found Neurontin helped me a bit(similar to Topomax), but I have discovered not all docs are familiar with these drugs.  Best of luck with your appointment.  Gloria —

– Hide quoted text — Show quoted text – Thank god I found this newsgroup.  I did not know how many other people suffered the way I do. After a trip to the neurologist and monthly trips to the doctor, we still haven’t found any type of medication that will lessen the severity of my everyday headaches.  I thought we found one for my migraines ( Amerge) but know it seems to take 6 hours for it to work.  Imitrex doesn’t work at all for me. My family doctor had upped my dosage of Propranolol about 7 times now and this doesn’t work either.  The forst neurologist didn;t even send my family doctor a report from when I went to see him.  He said my headaches are stemming from my migraines and that there is a list of meds to try!!  Why thanks doc.  When I went on this newsgroup I heard of Topomax from someone so I asked my doc. She sai she was not familiar with it.  So now on June 12 I will go see yet another neurologist.  in the mean time my doc will up my meds once again and I will suffer until the 12 of June (at least I don’t have to wait 4 months like my first appointment) Lisa

Response:

I can’t believe it’s taken me so long to find this group.  Thanks so much for all of your fantastic info and support.  I have suffered from migraines induced by birth control pills for the last 7 years.  To answer the obvious question, I need to be on birth control pills because I have Polycystic Ovarian Disease.  Without the pills, I am a mess, adn I risk becoming infertile.  Anyway, I’ve taken Imitrex 25 mg orally for the past two years.  I’ve built up a tolerance, and now I have to take 2-4 pills to kick a headache.  I’m considering injections or the nasal spray, but I know little about them.  Any input you have would be so helpful.  Thanks!  Alisha Y.

Response:

I can’t believe it’s taken me so long to find this group.  Thanks so much for all of your fantastic info and support.  I have suffered from migraines induced by birth control pills for the last 7 years.  To answer the obvious question, I need to be on birth control pills because I have Polycystic Ovarian Disease.  Without the pills, I am a mess, adn I risk becoming infertile.  Anyway, I’ve taken Imitrex 25 mg orally for the past two years.  I’ve built up a tolerance, and now I have to take 2-4 pills to kick a headache.  I’m considering injections or the nasal spray, but I know little about them.  Any input you have would be so helpful.  Thanks!  Alisha Y.

Hi Alisha! Welcome to the best newsgroup ever!! I’m fairly new to this ng myself and have gotten a tremendous amount of support and good advice from these people and I’m sure that you will too! Best of luck to you! If you need support or caring, please let me know! Take care! Jackie

Response:

Hi Alisha,  I’m glad you finally found us, I was starting to get worried. :-)  I can’t help you with the Imitrex questions, since it’s never done me much good. I just wanted to welcome you to the group I wish you wouldn’t have had to look so hard to find. None of us want to have to be here, but I think I can say we’re all glad we are. The help and support to be had does an awful lot to heal. So welcome, and I’ll leave your question to those who know what they’re talking about.:-) Cyndi http://members.tripod.com/~cyn59/index.html

Response:

Hi Alisha The reason that the jabs work better than tablets, goes something like this; The tablets have to be adsorbed in the intestine that comes after the stomach (I’ll look it up; don’t remember it’s name in English). Some people who have migraines have inflamed intestines during their attacks, and the absorption of sumatriptan (=what is in Imitrex) along with adsorption of other substances in the intestine is very slow/bad. So there is a problem with actually getting enough of it into your bloodstream. For some people it seems to work fine though. The doctors recomend that you lie down horisontaly after taking a tablet; then supposedly the uptake is better. With the injections, the active substance goes more or less straight into the blood stream, which is why it works much more efficiently for a lot of people. But you get a ’shock effect’ with this sudden increase of the chemical in your bloodstream, and a lot of people feel side effects. In any case, not all of the sumatriptan is taken up by the body when you take a tablet; that’s why the dose of the tablets are 25, 50 or100 mg, while the injection only has 8 mg (at least I think so…maybe it was 6mg…can’t remember right now) and all of it goes into your bloodstream; and finally to the neurons where it does it’s ‘job’. I don’t have any experience with nasal spray yet, but from what I’ve heard it’s pretty efficient, and the side effects don’t feel as bad. If I get more migraines I want to try it. I use tablets when I have ’small’ migraines, and when I’m not feeling too ill, but I take a jab if it’s a real headbanger.  For me I feel completely fine within 15-20 mins if I take one in the thigh. For some people Imitrex doesn’t work at all though. I’m no medical doctor or anything like that, but I heared this stuff from a neurologist who lectured about migraines. Good luck!! Anna – Hide quoted text — Show quoted text – I can’t believe it’s taken me so long to find this group.  Thanks so much for all of your fantastic info and support.  I have suffered from migraines induced by birth control pills for the last 7 years.  To answer the obvious question, I need to be on birth control pills because I have Polycystic Ovarian Disease.  Without the pills, I am a mess, adn I risk becoming infertile.  Anyway, I’ve taken Imitrex 25 mg orally for the past two years.  I’ve built up a tolerance, and now I have to take 2-4 pills to kick a headache.  I’m considering injections or the nasal spray, but I know little about them.  Any input you have would be so helpful.  Thanks!  Alisha Y. Alisha, the injections work a lot better for me than the pills ever did…but they do have their side effects. Karen

– …please delete the x from my e-amil adress if you reply.

Response:

I can’t believe it’s taken me so long to find this group.  Thanks so much for all of your fantastic info and support.  I have suffered from migraines induced by birth control pills for the last 7 years.  To answer the obvious question, I need to be on birth control pills because I have Polycystic Ovarian Disease.  Without the pills, I am a mess, adn I risk becoming infertile.  Anyway, I’ve taken Imitrex 25 mg orally for the past two years.  I’ve built up a tolerance, and now I have to take 2-4 pills to kick a headache.  I’m considering injections or the nasal spray, but I know little about them.  Any input you have would be so helpful.  Thanks!  Alisha Y.

Alisha, the injections work a lot better for me than the pills ever did…but they do have their side effects. Karen

Response:

Filed under: Polycystic Ovarian Disease

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