Polycystic Ovary Syndrome (PCOS)

Help…just diagnosed and very confused (preg mentioned)/

Question:

>Aren’t they such old farts?

LOL..this made me laugh ladies….so funny!! trish..

Response:

Your situation is very similar to mine. I’m not clear on what the correct terms are, but there is an actual disease of the ovaries (or hormones?), and then there is the mimicking of this disease– brought on by obesity. I had most all of the symptoms, but all of my blood tests came back normal and my ovaries are normal– I’ve never had a cyst as far as anyone has been able to tell. I too got pregnant without assistance (heck, without planning even) and had an uneventful pregnancy. But now, we have had unprotected sex for about 5 years (my daughter is 6 and a half) and so far haven’t hit it right. Last year I went to two doctors for help and they both recommended weight loss. So I’ve lost 70 lbs (still have a long long way to go), my periods are like clockwork and I’ve seen great improvements in both acne & skin tags. I’ve also become the Queen Mother of PMS… but that’s something I haven’t discussed with my doctor yet. I have an appt next month. But of course, you are not me… weight loss has helped my symptoms, but so far I’m still not pregnant. I could not tolerate any of the BCPs they tried me on.. although my periods were regular, I was a weepy mess and gained 20 lbs. BCPs were supposed to get me regular for a year or so before they tried aggressive fertility meds. I’m still holding out hope that I’ll soon conceive.. since I feel so much better physically. But time is running out.. I’m almost 38 and have watched two of my friends go through scary 40+ pregnancies– they both had good results, but I was really amazed at times that they were able to hold it together. Anyway.. hang in there. Weight loss done sensibly can be the least invasive thing to try, but it’s slow going & not much fun OH, I just reread– you had a blood test… elevated testosterone levels can indicate the actual disease. And I think some other levels they look at also. Has your OB seen the blood test results?? I would tell him "the nurse said this means (whatever she said)… you don’t agree??" I’ve had nurses make comments about blood pressure changes, etc… then the doctor say "oh, I’m not concerned about that reading at all" (????) Also– my husband is 12 years older than me too… He’ll be 50 (!!) later this month. Aren’t they such old farts? BUT only half the time– the other half of the time he acts like he’s 13 & I’m his mommy GOOD LUCK!!! – Marya – Hide quoted text — Show quoted text -In article <19980314035601.WAA01…@ladder01.news.aol.com> saphyre…@aol.com (Saphyreblu) writes: >Hi all!  Please help clarify a few things if you will.  First of all is there a >difference between pcos and pcod.  I was told on Wednesday 3-11 that I have >polycystic ovarian disease is this different than syndrome or are the terms >interchangable?   >I am a 35 yo woman, (will be 36 in may), with a 2 1/2 year old daughter >conceived naturally without aid of fertility drugs and with no complications. >However, I have had irregular periods for about 10 yrs now, was 4 1/2 months >pregnant with my daughter before I knew it as my periods were always wacky.  I >am obese.  I saw my first RE on 3-11, just on the basis of a blood test >administered by my ob/gyn and what I explained above his nurse told me I have >PCOD and gave me a pamplet on it although the Dr. never mentioned cysts at all. > Am I overreacting, or in denial,I am thinking that I should probably have a >2nd opinion, this diagnosis just seems very premature.  Could this just be that >I am overweight and if I lose the weight things will be easier as far as >getting pregnant goes? >Right now they have me on provera, then bcp for a month then they want me to >give myself intramuscular shots of Fertinex and also take progesterone >supplements.  This all sounds really scary to me, I’m getting terms confused, >I’m hearing one thing from the Dr. and other things from the nurse.  They want >me to meet with a weight counselor but not to delay treatment becuz of my age, >they want my hubbie to take another sperm analysis, more blood from me, I have >pages of notes on what I am supposed to do in the next month and I’m really >worked up.  I can’t sleep.  I can’t get this off my mind.  I know I have one >child already and to some this may sound selfish but I really want my daughter >to have a sibling.  I was an only child and grew up lonely and I don’t want her >feeling the same way.  My husband, although supportive, is 12 years older than >I am and feels as though he is getting too old for all of this and that he will >back me in whatever I want but he just doesn’t feel the drive I do.   >I never thought I would be married, never thought I would get pregnant, now >that I have done both I want to extend my family and I feel like my earlier >hesitation and my waiting until my thirties has someway penalized me.  I know >this isn’t rational but I really feel awful.   >I would really like to talk to someone.  Please feel free to email me… >Jocelyn >(Saphyreblu) >E-mail to Saphyre…@AOL.com >Webpage: Http://members.aol.com/saphyreblu/index.html >I am certain of nothing but the holiness >of the Heart’s affections and the >truth of the Imagination. >                                  John Keats

Response:

Hi all!  Please help clarify a few things if you will.  First of all is there a difference between pcos and pcod.  I was told on Wednesday 3-11 that I have polycystic ovarian disease is this different than syndrome or are the terms interchangable?   I am a 35 yo woman, (will be 36 in may), with a 2 1/2 year old daughter conceived naturally without aid of fertility drugs and with no complications. However, I have had irregular periods for about 10 yrs now, was 4 1/2 months pregnant with my daughter before I knew it as my periods were always wacky.  I am obese.  I saw my first RE on 3-11, just on the basis of a blood test administered by my ob/gyn and what I explained above his nurse told me I have PCOD and gave me a pamplet on it although the Dr. never mentioned cysts at all.  Am I overreacting, or in denial,I am thinking that I should probably have a 2nd opinion, this diagnosis just seems very premature.  Could this just be that I am overweight and if I lose the weight things will be easier as far as getting pregnant goes? Right now they have me on provera, then bcp for a month then they want me to give myself intramuscular shots of Fertinex and also take progesterone supplements.  This all sounds really scary to me, I’m getting terms confused, I’m hearing one thing from the Dr. and other things from the nurse.  They want me to meet with a weight counselor but not to delay treatment becuz of my age, they want my hubbie to take another sperm analysis, more blood from me, I have pages of notes on what I am supposed to do in the next month and I’m really worked up.  I can’t sleep.  I can’t get this off my mind.  I know I have one child already and to some this may sound selfish but I really want my daughter to have a sibling.  I was an only child and grew up lonely and I don’t want her feeling the same way.  My husband, although supportive, is 12 years older than I am and feels as though he is getting too old for all of this and that he will back me in whatever I want but he just doesn’t feel the drive I do.   I never thought I would be married, never thought I would get pregnant, now that I have done both I want to extend my family and I feel like my earlier hesitation and my waiting until my thirties has someway penalized me.  I know this isn’t rational but I really feel awful.   I would really like to talk to someone.  Please feel free to email me… Jocelyn (Saphyreblu) E-mail to Saphyre…@AOL.com Webpage: Http://members.aol.com/saphyreblu/index.html I am certain of nothing but the holiness of the Heart’s affections and the truth of the Imagination.                                   John Keats

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Has anyone heard of this problem, Please?

Question:

Wow there is someone out there who has ovaries like mine i am 26 and my husband and i, have bben trying to have chiodren for over a year now . My doctor claims i have polycystic ovarian disease or also called Steins leventhal disease either way it is the worst nightmare i have ever gone through not only the thought of not having children , but the side effects from the disease, i used to be a beautiful person to look at on the outside , but now i basically look like a fat hairy blob who is always hormonally out of wak. Thank gopd my husband totally stands by my side. I am going in for surgery that has only been done once before that i have ever heard of, my dr is going to laproscopic surfery on my ovaries, with a laser he is going to poke holes all over them till they look like swiss cheese, he has had really good results with thison another patient who was a little worse than i, but if this fails me i dont know what to do . Any ways enough about me, how are you doing ? Did  you adopt? or are you interested? I would love to hear fromn you Sincerly Wendy Gamber Snell

Response:

- Hide quoted text — Show quoted text – Wow there is someone out there who has ovaries like mine i am 26 and my husband and i, have bben trying to have chiodren for over a year now . My doctor claims i have polycystic ovarian disease or also called Steins leventhal disease either way it is the worst nightmare i have ever gone through not only the thought of not having children , but the side effects from the disease, i used to be a beautiful person to look at on the outside , but now i basically look like a fat hairy blob who is always hormonally out of wak. Thank gopd my husband totally stands by my side. I am going in for surgery that has only been done once before that i have ever heard of, my dr is going to laproscopic surfery on my ovaries, with a laser he is going to poke holes all over them till they look like swiss cheese, he has had really good results with thison another patient who was a little worse than i, but if this fails me i dont know what to do . Any ways enough about me, how are you doing ? Did  you adopt? or are you interested? I would love to hear fromn you Sincerly Wendy Gamber Snell

THis technique is rather common. The surgery that you will be having is only a temporary fix. It may allow you several fertile cycles before the ovary once again regenerates new tissue and becomes cystic again. You are right that this disease can have terrible psychological as well as physical effects. Good luck on your treatment. — Kimball O. Pomeroy, Ph.D. Laboratory Director Samaritan Institute of Reproductive Medicine "You can’t change the direction of the wind,  but you can change the set of your sails."

Response:

I had a total hysterectomy the end of Nov. 95.  We had been trying for 5 years.  After my surgery my doctor commented that he had not seen overies like mine.  We knew that I’d had many many many cysts over the years, but he said that my overies looked like they had never actually matured.  He felt that after examing them that I probably would never have produced an egg.  I have never had "regular periods" and the amount of andogens(male hormones) that my ovaries have produced has increased over the years.  I had my share of horror stories about infertility as well as period stories.  Ever had a HEAVY period for 6 months?  It’s not fun.  Or going through doctor after doctor claiming to be infertility specialists, just to be told you needed exploritory surgery or to loose weight and you’d get pregnant.  All of the people who thought they were being kind when they comforted you with the phrase: "If God wants you to have a baby you will."  Or, "Just relax and it will happen."  Or having your mother tell you that you should consider yourself lucky for never having to have children. I think I got off the subject a bit!  Sorry, but I haven’t had a place to vent this way.  I’ve been reading this Group for about two weeks since we got back up on the net.  I feel for anyone who is going through it. In some ways I’m glad it’s over with.  Now that everything is out I don’t have to keep wondering if we should try one more time.  I think that’s one of the worse things that you keep putting yourself through. Should we try this once more?  When do you give up.  Well it’s over now. Hopefully someone will get through my long windedness and e-mail. Thanks for all your time. Michelle Barton

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treatments for polycystic ovarian?

Question:

Please forward to me any info. on studies or treatment for polycystic ovarian disease.  A friend of mine has it and is unsatified with the options her doctor gave her.  I’m a first year trying to pass neuro right now.  Please e-mail any info., since I can’t keep checking the bulletin boards or I’ll never pass. Thanks in advance,

Response:

Greetings: From a herbalistic approach you might try the following liquid extract combination: Borage, Motherwort, Uva Ursi, Dandelion Root, Parsley, Juniper Berry and Chamomile. 10 drops of each, three times a day. Drink lots of water to flush out the toxins, also ginger for pelvic circulation. Also blend a little of each herb ( a couple of drops) and rub it in the pelvic area three or four times a day. This is an old Amish blend that works on a polycystic kidney also. Any questions send me a

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